This is my youngest son. I refer to him on my site as The Little One. He was born two days after 9/11/2001, the youngest of 7. His name is Jonathan Luke, but we call him Jon-Luke.
Jon-Luke is diagnosed with PDD-Nos on the autism spectrum. I want to tell you, he wasn't always this way. He was a very energetic little boy that was developing normally. Due to the frequent germs picked at day care, he was sick for his wellness visits. He was behind on his shots. The doctor assured me that he could receive four shots in one visit without a problem. Instead, he had a horrible reaction. The next day, he woke up with swollen knees the size of tennis balls. He also had one swollen eye. He was lethargic. I was worried. That was the beginning of many days I missed from work. He never recovered. The following months became a revolving door of specialists in and out of my home. I also had to travel to many specialists hours from my home. He retreated into his own world and didn't even respond to his name. He stopped talking. I lost my job.
He has received early intervention since he was a little over 2. I believe this is why he has progressed so much. As a mom to 6 other "heatlhy and normal children", my heart aches for Jon-Luke. As much as he progresses, he will probably never do all those things that other parents treasure. He will never win a championship (like his brother), he will never be elected to a prominent position in a club (like sister). We will not celebrate when he gets his driver's license...like we did with my oldest. He will probably not attend college. We will never watch him dance with his wife at his wedding.
It's painful enough that every time we reach milestones that help form my other children into responsible adults in society, I am reminded that Jon-Luke probably never will do the same things. Being autistic, he has his own milestones, very different from my neuro typical children. We celebrate when he achieves the smallest goal. When I hear people like you minimize his triumphs and his struggles, it's like applying salt on a wound.
You need to know, most autistic parents are the most involved parents I know. We go through obstacles you couldn't imagine.
There are parents that visit all the homes in the community to give them special candy to hand to their autistic kids...because they are on special diets.
There are parents that take their kids to special activities with other "special needs" kids.
There are parents that move to school districts that provide the therapy their child needs.
There are kids in my son's school that travel over an hour from different counties, just to get the appropriate treatment. Don't you think the parent's hearts break? You think parents like to put their 5, 6 or 7 yr old kids on a bus at 6:45am , when school starts at 9am? This year, my son's bus was in an accident. Imagine the guilt the parents had to deal with?
Our lives have drastically changed since his diagnosis and so has the life of my son. I wish he was JUST A BRAT. No, he's not behaving like an IDIOT ..like you. He's autistic. What's your excuse?
Perhaps, I should just pity you. It's unfortunate that you're father belittled you. Obviously, you are the product of your father's verbal abuse and rage. I have good news. You have the ability to change for the better. See a therapist, it can help.
Let me end by saying, it's not okay for you to refer to our autistic kids the way you have. Children are innocent. It's not their fault that they developed autism.
Sincerely,
SuperMom in NY
Who is Michael Savage?
Tomorrow I will post another entry with some important info...
Want to read more about The Little One and our life with autism? Click on PDD-Nos Memoirs.




8 comments:
He was a very energetic little boy that was developing normally. Due to the frequent germs picked at day care, he was sick for his wellness visits. He was behind on his shots.
Thank you so much for posting that letter. What he said was just horrific. And what's worse is that his network is defending him! There's a petition to demand for him termination: http://go.care2.com/15869712
Nice letter. My two kids are on the spectrum, ages 12 and 13. There is also a petition to get his sponsors to leave.
"As much as he progresses, he will probably never do all those things that other parents treasure. He will never win a championship (like his brother), he will never be elected to a prominent position in a club (like sister). We will not celebrate when he gets his driver's license...like we did with my oldest. He will probably not attend college. We will never watch him dance with his wife at his wedding."
Please don't set limits for your son. Or limit his potential. He may very well end up doing all those things you have listed here. Limits were set for me by all kinds of people. I am autistic, am married and about to go to university. Everything I do takes a little longer but I do get there.
I wish the best for you and your son.
from renaeden.
Hilary and autismfamily:
Thanks for the heads up on the petition. I wrote another post on the same day I wrote this one with that info, but haven't published it yet. I needed to add a few more links and didn't have time to research it. I'll try to finish it and post it today. :)
renaeden:
I'm not setting limits, I'm being realistic. His father is doing a good job of being in denial.
I hope he does overcome the odds and he accomplishes a lot. Unfortunately, not all autistic kids are on the same level. My best friend's autistic son doesn't talk at all, while mine can recite movie scenes...(although some of the words are hard to make out). There are some autistic individuals that can care for themselves, while others may have to live their lives in assisted living communities. I worked for Early Intervention, I've seen the wide spectrum.
Thanks for your comment and I commend you for your achievements.
I only hope the best for my son.
supermom_in_ny
What can I suggest except some encouraging tips for the effected child and I hope if his parents co-operate and boost his will power to become a normal man and they can do this by several ways. give the child special cares and make him look feel that people respect him and want to enjoin his company. if his age fellow resist, even then a child can have better adherence to elders and can develop his personality in a quite smooth way for better up front life b4 him.
simply the people surrounding him need to take some special measures to look after him and grab him out of his issues that put him in sack of unhealthy domain of life.
wish him all the best,
spas
Wow, I used to listen to Michael Savage on the radio. After learning of this outrageous comment, I dare say I might not ever listen again.
Sad.
Michael Savage is a jerk. I can't even bear to listen to him.
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